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Saturday, March 16, 2013

Chemo Phase 2 Check

Hello friends, it's been January since our last post. Hard to believe just how quickly this year is going now that we are at the mid point of March. 

Great news! Susan has finished her chemo regime and did it with flying colors. You'll remember it was done in 2 phases. The first was a concoction of "poisons" administered through her port every 3 weeks over a 12 week period. The second phase was another concoction of different drugs administered weekly for 12 weeks.  Due to a bad cold she had to postpone only one of her first phase treatments but she still completed the course in 25 weeks. 

Can you believe that!  Yes, it's been that long since she began the chemo.  But then it was last July when she had her first surgery. My it goes fast. 

Here is a photo of her last session a week ago yesterday.  Our thanks go to the Dr. Mario Sy and his staff for the top notch care they've given Susan.


Last Chemo Session 8 March 2013

Now that we are done with chemo it's on to the radiation phase. This week Susan met with the Dr. Rajput who will perform the radiation. She told us initially we should plan on daily doses 5 times a week for 6 weeks and confirmed that this week.  She explained the procedure of pinpointing the radiation so as to avoid the heart and lungs. It's pretty sophisticated. Susan will get her markings next week.  Her markings will be tattoos but they will not be hearts, anchors or flowers. She will begin treatment on 3/27. Hormone therapy will follow radiation for 5 years.

Susan has remained positive and quite strong throughout the last several months. She has done remarkably well with each chemo treatment. In talking with many others who we know we are so fortunate and blessed.  It could be much worse. 

A couple weeks ago Susan was to begin her session when all the nurses raced to the lady in the next room. She had gone into shock from her medication. It was scary. But not 30 minutes later a lady 2 doors down did the same thing. Very scary. Very, very scary. Susan fortunately never experienced anything like that.

We've seen a young man a couple of times - maybe in his early 40's - in for his treatments. He clearly was having a tough time with chemo in lots of ways. Sad.

Last week we met a lady in for her monthly treatment. When we asked how many more she said, "I'll be on this forever". I asked what cancer she had. She told us she has an incurable bone marrow cancer. WOW talk about a ton of bricks! 

Waiting for Susan's last treatment we encountered a "chemo friend" we'd met before and who had completed her chemo a couple of weeks earlier. She reported that in that short time she is feeling so much better and has so much more energy. That's even more for Susan to look forward to. 

We know we are blessed. Susan is reminded of that each week she comes home from her group session at Gilda's Club. Although those sessions are good they can sometimes be sort of a downer for her too.

It's Back!
I'm also excited to report Susan is getting her hair back!  I can't believe how fast it is growing. It's different from her "original" hair but looks wonderful. It must be 3/8" long already. It's a different color too. I like it. Yesterday she went to see her friend and hair stylist Fran. I told Susan that was very optimistic to think Fran would style it so soon. She looked at me with that expression of "you dork". I think she wanted to show it off actually and it turns out Fran trimmed her neck. 

Family
Son Brad will be flying home with Susan's mother Ella tonight.  Ella has been wintering in AZ with Susan's sister Peg and family.  We know she's anxious to get home so will drive her to the Waterloo area on Monday. Hopefully our winter is done and she can get resettled quickly. Brad will unfortunately return home on Tuesday. 

Brad and Amanda also have great news. They are expecting their second and our forth grandchild next August. We are of course excited as they are. I'm sure that will be a travel destination next summer. Wait a minute, that's August in Yuma, AZ!

My dad is getting along okay since the loss of Mom at Christmas. He's trying to get a routine but that has to be hard to do. His health is okay at 92 although the skin cancer he had removed 2 years ago has come back as tumor in his neck. He has chosen to let nature take it's course. His birthday is next Friday and we hope to make it over for a dinner with him and a couple of my siblings. 

Things are well with us on all other fronts. We look forward to seeing our snow bird friends on their return to the heartland. We hope you all have a wonderful spring and a very bright summer. 

We'll keep you posted on progress along the way. 



Wednesday, January 9, 2013

Happy 2013

Christmas 2013 @ Our House
Wow, it's hard to believe we can be in 2013 already.  I remember receiving benefit statements in the late '70's showing future pension estimates for 2012. I thought, who'd be around that long but here we are in 2013.  Funny too that Jan 13, 2013 was THE date they time traveled to in the 1985 movie "Back To The Future".  So yes, here we are 2013. 

We hope you had a wonderful holiday season whatever your holiday is or isn't.  It's always a nice time of the year that is special to us.  

Give me a BIGger smile
01-04-2013
12-21-2013



Susan finished her 2nd and 3rd rounds in this phase of chemo last Friday and since our last post.  We believe this phase is a bit easier 
on her (says the guy who has never been through it) when compared to the first phase.  So with 3 down she has 9 more to go - then on to radiation.  She thinks it's a long time before it's over but it will be here before we know it.  

I've mentioned her doctors before and how we feel blessed having them on our team.  Well, I spoke to another lady on Sunday who mentioned her mother-in-law had the same Oncologist (Dr. Sy) and Radiologist (Dr. Rajput) and she loved them.  Of course I had to say "I hope she was a Winner".  She did Win and felt fortunate as we to have had them as part of the team.  


Last week Susan had a substitute driver and "assistant chemo caregiver".  Our friend Denise Doss picked her up and got her to and from treatment.  I heard from both of them they had a really great time catching up.  


Susan was going to drive to Atlantic after treatment that day to join me, but with so many in the family getting sick we decided that would not be wise. 


My mother passed away on 12-24-12.  She was 90 and had suffered from the effects of colon cancer the past year and nine months.  She'd done pretty well until the last few weeks.  Her mind was always so sharp and remained so until very near the end.  While we knew the eventual 
outcome, we were still  shocked and saddened with her passing.  Fortunately Dad and some of my siblings were with Mom.  She is better now and we are relieved she is at peace. 

The day she passed is also Susan's birthday. Since few restaurants are open Christmas Eve we always have dinner in.  The steaks were ready to come off the grill when my brother Ron called with the news.  Needless to say it changed the evening.  They unfortunately had a long evening making the many calls to friends and family. 


I traveled to Atlantic the day after Christmas.  Dad was still in his PJ's, flat out in bed sick at 1:00 PM.  We all thought it was probably anxiety and a lot of sadness.  Turns out sister Nancy got quite sick that night followed by several others over the next couple of days.  Being a Winner herself for 25 years, Nancy knew it would be unwise for Susan to join us for the services.  Good call sis!  The consensus opinion was a norovirus had landed square in our midst.  Unfortunately it 
took down several in the family.  Younger brother Rob was so sick on Saturday he could not attend Mom's funeral.  So he was both physically ill and doubly heart sick.  

Mom's funeral service was such a positive and uplifting service.  I told a friend that it was the nicest funeral I'd ever attended and I'm glad it was for our Mom.  Nancy, my oldest sister, gave a wonderful tribute for mom based on inputs from many of us blended in her own way with words.  Fortunately Mom had the chance to read it and gave her approval by calling it "neat", a word she often used to describe what she really liked.  And it was a "neat" tribute to a wonderful lady and attended by so many.



So, Susan was not able to be with us due to all the sickos in Atlantic.  She'd dropped Riley and Rocco off at the kennel in Bettendorf however before Friday chemo in anticipation of attending.  You can imagine they were two mighty happy Yorkies when she picked them 5 hours later. Or should I say 3 days early.


Lynn Betz, Vanguard
Rick's Auto Clinic
Niece Heather & Chris
Susan is now on an every Friday morning chemo schedule which works out well.  This past week she slept a bit more than the last two in this phase.  So it's probable the cumulative effect is continuing and having an effect.  

We learned this week there will be a break between the end of chemo and radiation.  They want to ensure her white cell counts are back up before the radiation. That does extend her a couple weeks or more into the spring but that works too.  I know how anxious she is to get through it all. 

Susan had a mammogram, a surgeon follow up and a blood draw today. She will have an oncologist visit and chemo on Friday.  So you can see she stays "busy".  She got an "all clear, no disease and healing very nicely" report this morning from radiology and her surgeon.  Exactly what we expected to hear!

None of our kids were able to be here for Christmas although Christine and Laura came back for Mom's services. They were in on Friday night and headed home early on Sunday.  They even got to drive in a snow storm from Des Moines to Atlantic (white knuckles).  Brad was to be back in San Diego for his promotion ceremony (to WO-4) so was unable to come back.  They hoped to be here in January but we decided it will be better when Susan is finished with treatments.  

When that time comes we'll also be up for a road trip.  So everyone think spring and it will be here soon. Although it's 45 F and sunny outside right now.  Nice March weather in early January.

Thank you to all who have sent notes, cards, emails, food, memorials and flowers.  Susan appreciates her support base so much and knows she is blessed. We are blessed.

Happy New Year and many blessings to all.